Former ICU Patients and Their Family Members Share Their ICU Experiences

Sharing your ICU experience will help Critical Care Professionals improve the experiences of future ICU patients and their families

Please Share Your Story

We have found that it is very helpful for former ICU patients and their family members to share their experiences with other former ICU patients. 

Surviving the ICU is a subject that is only truly understood by former ICU patients as well as the family members of former ICU patients.  

We request that you please share your ICU experience by completing the above form and that you read the shared experiences of others.

Read Patients' ICU Experiences Submitted to AICU

The Missing Holiday Card

My near death experience landed me in the ICU, the culprit septic shock secondary to pneumonia

At the time of my ICU experience I was 52 years old, a husband and father of 3 adult children.  In 2015, I spent two consecutive months in ICUs, at two different New Hampshire hospitals, with a rare and often deadly strain of pneumonia.

I was in the ICU last April 2016 for a sever reaction to Ramipril. I had tongue swelling and was in the ICU for 4 days. According to my wife, I was having hallucinations which lasted even I came home for a few days.

1 / 1

Please reload

Links to Videos of Other Patients' ICU Experiences

The Society of Critical Care Medicine has developed several videos featuring interviews with caregivers and ICU survivors. These videos also are available at www.youtube.com/SCCM500.

A Physician's Experience as an ICU Patient

Published on Feb 19, 2014

Alison Clay, MD, shares her experience as an ICU patient and survivor during the Society of Critical Care Medicine's 43rd Critical Care Congress. Dr. Clay shared her story as part of the ICU Liberation initiative, which seeks to disseminate information about pain, agitation, delirium and mobility to critical care professionals.

How to improving care after ICU discharge

Published on Mar 6, 2014

 

Patients share their perspectives on life after the intensive care unit (ICU). Post-intensive care syndrome, or PICS, is made up of health problems that remain after critical illness. They are present when the patient is in the ICU and may persist after the patient returns home. These problems can involve the patient's body, thoughts, feelings, or mind and may affect the family. PICS may show up as an easily noticed drawn-out muscle weakness, known as ICU-acquired weakness; as problems with thinking and judgment, called cognitive (brain) dysfunction; and as other mental health problems.

What advice you have for other ICU survivors?

Published on Mar 6, 2014

 

Patients share their perspectives on life after the intensive care unit (ICU). Post-intensive care syndrome, or PICS, is made up of health problems that remain after critical illness. They are present when the patient is in the ICU and may persist after the patient returns home. These problems can involve the patient's body, thoughts, feelings, or mind and may affect the family. PICS may show up as an easily noticed drawn-out muscle weakness, known as ICU-acquired weakness; as problems with thinking and judgment, called cognitive (brain) dysfunction; and as other mental health problems.

What advice would you give ICU staff?

Published on Mar 6, 2014

Patients share their perspectives on life after the intensive care unit (ICU). Post-intensive care syndrome, or PICS, is made up of health problems that remain after critical illness. They are present when the patient is in the ICU and may persist after the patient returns home. These problems can involve the patient's body, thoughts, feelings, or mind and may affect the family. PICS may show up as an easily noticed drawn-out muscle weakness, known as ICU-acquired weakness; as problems with thinking and judgment, called cognitive (brain) dysfunction; and as other mental health problems.

What was your ICU experience?

Published on Mar 6, 2014

 

Patients share their perspectives on life after the intensive care unit (ICU). Post-intensive care syndrome, or PICS, is made up of health problems that remain after critical illness. They are present when the patient is in the ICU and may persist after the patient returns home. These problems can involve the patient's body, thoughts, feelings, or mind and may affect the family. PICS may show up as an easily noticed drawn-out muscle weakness, known as ICU-acquired weakness; as problems with thinking and judgment, called cognitive (brain) dysfunction; and as other mental health problems.

Our team and other ICU survivors would like to know how long your were in the ICU, experiences that you had while in the ICU and how you have been feeling since your ICU stay (experiences that you believe are or could be related to post intensive care syndrome).

We have found that shared experiences by former ICU patients significantly benefit other former ICU patients during ICU Survivor Group sessions.

+ If you want your story changed or removed at any time, please notify us via email at: help@aftertheicu.org, and we will edit or remove your story as soon as possible.

 
Post Intensive Care Syndrome, PICS
Post Intensive Care Syndrome, PICS
After the ICU,  (617) 732-4726 , 75 Francis Street, Boston, MA  02216 ©2016 by AftertheICU.  All Rights Reserved.  Click here to Read Our Privacy Policy, Disclaimers and Disclosures.